Patient organisations
Run your own branded community, keep members informed and turn their experiences into insights you own.
Discover for patient organisations
By Esperity
Every patient community, one safe universe
Patient Universe gives patient organisations their own branded online home, where members talk, learn, meet and take part in research — safely moderated, under your brand and with your data in your hands.
- Your own brand
- Private groups
- Anonymous if members wish
- EU-hosted
- GDPR by design
Who it's for
Patients and carers
Connect with people who understand, find trusted information and join events — anonymously if you prefer.
Find your communityIndustry and research
Run advisory boards and patient partnership programmes in one compliant, non-promotional platform.
Discover for industryPatient communities deserve better than group chats
Patient organisations do vital work with small teams. But their communities are often scattered across tools that were never made for health conversations.
Scattered
Members spread across WhatsApp, Facebook, e-mail lists and newsletters.
Not safe enough
Public platforms are the wrong place to talk about a diagnosis or treatment.
Not yours
Social networks own the conversations, the contacts and the data.
Patient Universe brings it all together, in one place you control.
A ready-made online home for your community
We build and host community platforms for patient organisations. Each organisation gets its own branded page, chooses which modules to switch on and manages members, content and moderation from one simple admin area. No technical skills needed — we set it up with you and train your team.
- Your own web address
- yourname.patientuniverse.com
- Modular
- switch features on or off at any time
- Multilingual
- EN, FR, NL, ES
Pick the modules your community needs
Discussions
A moderated space to ask questions and share experiences.
Private groups
Closed peer groups per condition, treatment or role.
Educational content
Trusted articles, brochures and videos by topic.
Events
Webinars and meetups with registration and reminders.
Surveys
Build questionnaires with logic and see results instantly.
Clinical trials
Help members find research relevant to them.
Announcements
Reach all members or only those interested in a topic.
Dashboard
A clear, anonymous view of how your community is doing.
Start simple. Add modules as your community grows.
Generate insights — without giving away your community
Your members' experiences are your organisation's most valuable asset. With Patient Universe you run your own surveys, follow trends in your community and decide yourself what you share with partners — aggregated results, never your member list.
- You are the data controller
- Sponsors and partners have no access to member data
- Members decide themselves whether to take part in projects
Built for people living with a condition
Anonymous if they wish
A random ID instead of a name.
No passwords
Secure log-in link by e-mail.
Health data protected
EU hosting, explicit consent and encryption of sensitive information.
Accessible
Designed for members with visual, cognitive or motor impairments, on any device.
Trusted knowledge, close to home
Members read articles, join webinars and answer questionnaires whenever it suits them — on phone, tablet or computer. Notifications help them keep up with what matters, without being overwhelmed.
Live in four simple steps
- 1
Book a call
Tell us about your organisation and your members.
- 2
Choose your modules
We help you pick what fits your community.
- 3
We set it up
Your brand, your languages, your first content; we train your team.
- 4
Invite your members
Open the doors and start the conversation.
Working with patients as a pharma or life-science company?
Run advisory boards, co-creation and long-term patient partnership programmes in one compliant, non-promotional platform — self-managed or managed by Esperity.
Discover for industryBuilt by people who work on the patient side
Esperity works with patient organisations, scientific societies and healthcare partners across Europe on patient communities, patient education and clinical trial finders. Patient Universe brings that experience together in one platform. Based in Brussels.
About EsperityFrequently asked questions
Give your community the home it deserves
Book a 30-minute call. We'll show you Patient Universe and what your community could look like.