For patient organisations and federations
Your community, your data, your voice
Patient Universe gives your organisation its own safe, branded online home. Bring members together, share trusted information, follow up with everyone in one place — and turn what your community knows into insights you own.
Your brand · Your members · Your data · EU-hosted and GDPR by design
You know your community best. Your tools should too.
Patient organisations do remarkable work with small teams and many volunteers. But the tools around them were not made for patient communities.
Members spread across channels
WhatsApp groups, Facebook pages, newsletters and e-mail lists. Nobody has the full picture, and follow-up gets lost.
No safe place for sensitive conversations
Public social media is not the place to talk about a diagnosis, a treatment or a bad day. Members hold back, or share too much in the wrong place.
Your data sits on someone else's platform
Social networks own the conversations, the contacts and the reach. If they change the rules, you lose your community.
Little oversight, lots of work
Who joined, who is active, which topics matter, which questions keep coming back? Answering that takes hours of manual work.
Industry asks for your community's voice
Requests for surveys, advisory boards and insights keep coming. Too often, the data leaves your hands and the value goes to someone else.
Independence under pressure
Funding often comes from partners, but your credibility depends on staying independent from them.
One safe home for your whole community
Patient Universe brings your members, your information and your activities together in one place you control — on your own branded web address.
Your own branded community
Your logo, colours and languages on your own subdomain (e.g. yourname.patientuniverse.com). Members see your organisation, not ours.
Private groups for every situation
Closed peer groups per condition, treatment, life phase or role — for example newly diagnosed, young patients or carers — moderated by your team or trained volunteers.
Easier follow-up
Announcements, events, reminders and e-mail updates reach the right members at the right time, based on the topics they chose.
Full overview
One dashboard shows how your community is doing: new and active members, popular topics, open questions, event attendance and survey responses.
Generate insights yourself — without giving away your community
Your members' experiences can change research, care and policy. With Patient Universe, your organisation collects and analyses them itself, and decides what is shared.
Ask your community
Build your own surveys and questionnaires, or run repeated check-ins over time. Members answer in a space they already trust.
See what matters to them
Aggregated, anonymous insights on topics of interest, recurring questions and trends in your community, always shown above a minimum group size so no individual can be recognised.
Share on your terms
When industry, researchers or authorities ask for patient input, you set the scope, the consent and the format. Share aggregated results or reports — not your member list.
Your members' data never leaves your control. Esperity only processes it on your behalf, under a data processing agreement.
Work with partners — and stay independent
You are the data controller
Your organisation owns its members' data. Esperity is only the processor; partners get no access to your community.
No sponsor access
Sponsors who fund your community never see member data and have no say in content or moderation.
Your rules, your moderation
You decide who can join, what is public, how groups are moderated and which partners you work with.
Take part in projects on your terms
When a company invites patients for an advisory board or survey, you decide whether to pass it on to members, and members decide themselves whether to take part.
What's included
Discussions
A moderated space where members ask questions and share experiences.
Private groups
Closed peer groups per condition, treatment, phase or role.
Educational content
Articles, brochures and videos, organised by topic and language.
Events
Online and on-site events with registration and reminders.
Surveys and questionnaires
Build your own, with logic, multiple pages and results dashboards.
Clinical trial finder
Help members discover relevant trials, configured for your disease area.
Announcements
Reach all members, or only those interested in a topic.
Dashboard
Clear statistics on members, activity and topics, always anonymous.
Switch on only what you need. Start simple, add modules as your community grows.
Built for people living with a condition
Anonymous if they wish
Members can appear with a random ID instead of their name.
No passwords to remember
Members log in with a secure link sent by e-mail.
Health data protected
EU hosting, explicit consent for health data and encryption of sensitive information.
Accessible for everyone
Designed for members with visual, cognitive or motor impairments (target WCAG 2.1 AA), on phone, tablet or computer.
Made for teams with little time
Delegate safely
Give volunteers editor, moderator or group admin roles without handing over full control.
Moderation support
Word filters, member flagging and a moderation queue keep your community safe. Esperity can help with moderation if your team is small.
Ready in days, not months
We set up your community with you, train your team and help you launch with your first content and events.
One network, many communities
Umbrella organisations can offer a community to each member organisation, share content and events across the network and follow aggregated, anonymous statistics — while every member organisation keeps full control of its own members.
Affordable for every organisation
A one-off setup and a yearly licence based on the size of your community, with special rates for umbrella organisations and their members. Optional support for moderation, content and translation.