For pharma and life-science companies
Patient engagement that runs itself — from first call to final report
Patient Universe gives your teams one compliant place to find, select, onboard and work with patients for advisory boards, co-creation and long-term partnership programmes. Run it yourself, or let Esperity run it for you.
EU-hosted · GDPR by design · Non-promotional by default · Built with patient organisations
Patient engagement shouldn't take longer than the meeting
Every company wants the patient voice earlier and more often. But each advisory board still feels like starting from zero.
Weeks lost to recruitment
Finding the right patients means emails to patient organisations, waiting for replies and chasing profiles that don't fit the criteria.
Spreadsheets and inboxes
Intake answers, consent forms, availability and honoraria are tracked across Excel files, e-mail threads and shared drives.
Compliance worries
Consent, confidentiality, fair market value and transparency reporting must be right every time — and every review round adds delay.
Starting over every time
Patients who gave great input disappear after the meeting. Next time, recruitment starts again from scratch.
Patient organisations stretched thin
The same few patient advocates get every request, while the organisations helping you have little capacity.
Poor experience for patients
Unclear briefings, slow payments and no feedback on what happened with their input make patients less willing to take part again.
Weeks of coordination per advisory boardthat your team could spend on the content.
Higher riskwhen consent, contracts and payments live in different places.
Lost insightwhen experienced patient partners are not invited back.
One platform for every patient engagement assignment
Patient Universe turns the patient engagement process into a clear, repeatable workflow — and keeps the patients who want to stay involved in a consented network for future requests.
Find the right patients faster
Publish a non-promotional call for participants and share it through your own channels and partner patient organisations. Patients apply through one simple form that screens them against your criteria.
Everything in one compliant flow
Selection, intake, e-consent, confidentiality, scheduling and honorarium or voucher tracking happen in one place, with a full audit trail.
Build a lasting patient network
After each assignment, patients can opt in to your ambassador community. Next time, you post a request and consented members apply — no starting from zero.
How it works
- 1
Awareness
Publish a clear, non-promotional call for participants.
- 2
Recruitment
Share it with patient organisations and your ambassador network.
- 3
Selection
Screen applications against your criteria and select participants.
- 4
Intake
Collect background and practical information in a short intake.
- 5
Informed consent
Participants sign e-consent and confidentiality online.
- 6
Assignment
Run the advisory board, workshop, interviews or user testing.
- 7
Honorarium or voucher
Track and confirm compensation at fair market value.
- 8
Join the network
Participants who wish can join your ambassador community.
Every step is logged, so you always know who agreed to what, and when.
Start with one project, grow into a programme
Single assignments
For advisory boards, material reviews, co-creation workshops, focus groups or user testing.
- Branded space for your company
- Ready-made application, intake and consent forms
- Pay per assignment
- Participants can opt in to future requests
Patient partnership programme
For companies that want an ongoing, long-term relationship with patient partners.
- Your own ambassador community (10 to 100+ ambassadors)
- Announcements, educational content and events for your ambassadors
- Post new requests; consented members apply
- Engagement dashboard and annual reporting
Run it yourself — or let us run it
| Self-managed | Managed by Esperity | |
|---|---|---|
| Who runs the workflow | Your team, using the platform | Esperity's patient engagement team |
| Platform, forms, e-consent, dashboard | ✓ | ✓ |
| Outreach to patient organisations | You | We do it |
| Screening, selection and intake calls | You | We do it |
| Consent follow-up and participant logistics | You | We do it |
| Honorarium / voucher administration | Tracked in the platform | We handle it |
| Recruitment report | Dashboard | Full report |
Optional expert services: Scoping, assignment materials and pre-reads, interview guides, individual interviews, survey design, facilitation of advisory boards and workshops, insights reports, support with internal compliance review.
Designed for how pharma has to work
Non-promotional by design
Calls for participants and community content never contain product information.
Fair market value and transparency
Honoraria are tracked per participant to support transparency reporting under EFPIA and local codes.
GDPR and health data
EU hosting, explicit consent, encryption of sensitive data and strict separation per company.
Independence of patient organisations
Patient organisations that help recruit keep full control of their own members and communities.
Why Esperity
Esperity works on the patient side of healthcare, with patient organisations, scientific societies and industry across Europe. We build patient communities, patient education and clinical trial finders, and we organise patient engagement projects such as advisory boards. Patient Universe brings that experience together in one platform.
Transparent pricing
A one-off setup, then either a fee per assignment or an annual programme licence. Self-managed or managed by Esperity. Participant costs such as honoraria, vouchers and travel are always separate and passed through at cost.
Request the pricing sheet