Patient Universe

Features

Everything your patient community needs — in one safe place

Bring members together, share trusted information, organise events, ask the right questions and keep a clear overview. Switch on only the modules you need and add more as your community grows.

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Your brand · Your members · Your data · EU-hosted · GDPR by design

Connect

Bring your members together

A warm, moderated space where people who understand each other can talk, ask and support each other.

Community discussions

Conversations that feel safe, not public.

  • Posts with text, photos and links, with a preview of the shared link
  • Comments, replies and reactions so members can support each other
  • Polls to quickly ask your community's opinion
  • Topics and channels you define, e.g. "Newly diagnosed" or "Living with…"
  • Members can follow the topics they care about

For members: a place to ask what they don't dare ask elsewhere. For your team: one place instead of scattered WhatsApp and Facebook groups.

Private groups

Closed spaces for people in the same situation.

  • Groups per condition, treatment, life phase or role — e.g. carers, young patients, rehabilitation
  • Open joining, joining on approval, or invitation only
  • Members join automatically when they choose a matching topic of interest
  • Group admins (staff or trained volunteers) moderate only their own group
  • Group content is never visible to non-members or search engines

Inform

Share trusted information

Help members find reliable answers from your organisation, not from random searches.

Educational content

Your knowledge library, well organised.

  • Articles with images, video, tables and downloadable brochures
  • Categories and sub-categories, e.g. Diagnosis, Treatment, Daily life, For carers
  • Tags connect articles, posts and events on the same topic
  • Public or members-only articles
  • "Medically reviewed by" and review date for credibility
  • Schedule publication in advance

Announcements

Important news that reaches the right people.

  • News with image, text and a clear call to action
  • Send to all members or only to members interested in a topic
  • Pin to the top of the home page until a set end date
  • See how many members were reached and clicked

Clinical trial finder

Help members discover research that may be relevant to them.

  • Trial finder embedded in your community
  • Configured for your disease area, country and language
  • Your own introduction text to explain clinical research simply
  • Usage visible in your dashboard

Team page

Put a face to your organisation.

  • Introduce your staff, board and volunteers
  • Photo, role and short bio per person
  • Builds trust with new members

Engage

Organise, involve and follow up

Turn a community into an active one with events, follow-up and timely reminders.

Events

From webinar to members' day, organised in minutes.

  • Online, on-site or hybrid events, also recurring (e.g. monthly peer meeting)
  • Registration with capacity, deadline and waiting list
  • Extra questions, e.g. accessibility or dietary needs
  • Automatic confirmation and reminder e-mails, online link sent before the start
  • Participant list export and check-in
  • Add slides, recordings or a feedback survey afterwards
  • Members add events to their own calendar

Notifications and boosts

Make sure important things get noticed.

  • Notification bell for replies, reactions and news
  • Boost key posts, events or surveys to the top of the feed
  • Members choose what they receive and how: instant or as a digest
  • Quiet hours and frequency limits to avoid overload

Forms

Quick sign-ups and requests without extra tools.

  • Simple shareable forms, e.g. volunteer sign-up, workshop interest, contact requests
  • Export responses to Excel

Picture your community here

In a short call, we show you how your organisation would look on Patient Universe and which modules fit your members best.

Book a call

Insights

Understand your community — and own what you learn

Your members' experiences are your most valuable asset. Collect and analyse them yourself, and decide what is shared.

Questionnaires and surveys

Research-grade surveys, simple to build.

  • 9 question types: free text, single and multiple choice, drop-down, matrix, scale, ranking, number and date, plus explanatory text blocks
  • Multiple pages with progress bar; members can save and continue later
  • Skip and branching logic, with warnings for questions that can never be reached
  • Anonymous or linked responses, one-off or repeated (e.g. monthly check-in)
  • Target all members or a topic group
  • Preview and test mode before publishing; save as template
  • Link to external surveys too, if you prefer

Results and analysis

From answers to insight, without spreadsheets.

  • Real-time charts per question
  • Response and completion rates, drop-off per page
  • Filter by topic of interest; translated versions combined
  • Export raw data to Excel or CSV

Dashboard

A clear view of how your community is doing.

  • New, total and active members, by language and topic of interest
  • Most active discussions and most read articles
  • Rising and falling topics across articles, posts and events
  • Searches with no result — showing which content is missing
  • Event registrations and attendance, survey response rates
  • Always aggregated and anonymous, never below a minimum group size

Share on your terms

Work with partners without giving away your community.

  • Share aggregated results or reports, never member lists
  • You decide scope, consent and format for every request
  • Members decide themselves whether to take part in partner projects

Manage

Simple to run, even for small teams

Built for patient organisations with busy staff and dedicated volunteers.

Admin dashboard and modules

Switch on what you need, when you need it.

  • Turn modules on or off at any time, without losing data
  • Choose which pages are public and which are for members only
  • Adjust menu order, e-mail texts and community rules

Team roles

Delegate without losing control.

  • Admin, editor, moderator and group admin roles
  • Volunteers get exactly the access they need
  • Every action logged for full transparency

Member management

Know who your members are and what they care about.

  • Open registration, approval, invitation only, or check against your membership list
  • Import existing members in one go
  • Topics of interest and badges, e.g. Patient, Carer, Volunteer
  • Segments for targeted announcements, events and surveys
  • Newsletter opt-ins ready to export to your newsletter tool

Your brand, your languages

Members see your organisation, not ours.

  • Your logo, colours and welcome text on your own web address (yourname.patientuniverse.com)
  • Multiple languages per community; members choose their own

Protect

Safe for members, secure for your organisation

Your members share health information. We treat it with the highest care.

Moderation

Keep your community respectful and safe.

  • Every member can flag a post or comment, with a reason
  • Moderation queue with instant alerts to your team
  • Hide, edit, delete, pin or lock posts; warn, mute or block members
  • Automatic word filter and optional approval of posts by new members
  • Optional moderation support by Esperity

Privacy for members

People choose how visible they are.

  • Anonymous mode: a random ID instead of a name
  • E-mail addresses never shown to other members
  • No passwords: secure log-in link by e-mail
  • Members download or delete their own data at any time

Security and GDPR

Built for health data from day one.

  • Hosted in the EU, encrypted in transit and at rest
  • Extra encryption of sensitive information such as e-mail addresses, private messages and survey answers
  • Explicit, separate consent for health data, stored with date and version
  • Your organisation is the data controller; Esperity processes on your behalf under a data processing agreement
  • Two-factor authentication for admins and a full audit log

Accessible for everyone

Designed for members with different needs.

  • Target WCAG 2.1 AA
  • Adjustable font size, strong contrast, screen-reader friendly

FAQ

Let's build your community together

Book a 30-minute call. We'll show you Patient Universe, answer your questions and suggest the right modules for your organisation.

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